Haemophilia Foundation of New Zealand Incorporated
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HFNZ's mission statement is to provide excellence in care, education, advocacy and support to all people in New Zealand with bleeding disorders and their family/whanau.
Through our Outreach Workers, innovative educational initiatives and camps, physical activity and support footwear programmes, and educational grants, HFNZ is able to assist people with these chronic disorders through all stages of their life. We provide the tools to give our members a voice and try to ensure they receive the best care that medicine can offer - as despite advances in genetic technology a cure remains elusive.
The Haemophilia Foundation of New Zealand Inc (HFNZ) was originally founded as the New Zealand Haemophilia Society in 1958. The Foundation's story begins with one family seeking more information of their sons' rare, and then untreatable, disease, haemophilia. Haemophilia is characterised by a reduction or absence of a protein in the blood essential for clotting. A group of like-mined people eventually joined together to form an organisation whose goals are very similar to the those HFNZ holds today - to connect families of people with haemophilia with each other, to help younger members with their education, and to provide news of and access to the latest medical advances.
Today, HFNZ comprises four regions throughout the country (Northern, Midland, Central, Southern), with an Outreach Worker assigned to each. The National Office and administration of the Foundation is located in Christchurch. The National Council is responsible for the governance of the Foundation, on which sits the National President, two Vice-Presidents and a Treasurer, and a representative from each of the region's own committees. All Council positions are voluntary and decided by election at an Annual General Meeting.
Winning a donation from Sovereign will help us achieve:
Despite advances in treatment, many parents feel devastated when their child is diagnosed with a bleeding disorder. Part of the mission at HFNZ is to help share the message that the challenges you face when coping with a bleeding disorder ultimately make you stronger. HFNZ also provides support for families as they discover what haemophilia means for their family.
Held bi-annually, New Families Camps bring together young families affected by haemophilia and other inherited bleeding disorders from all over New Zealand. New Families Camp is our biggest event, involving over 150 campers and volunteers. Parents gain strength through knowledge and understanding, and look to each other for friendship and support. For many children, camp is the first time that they have been around other children and adults with haemophilia. This camaraderie provides campers with a sense of relief that they are not the only ones with haemophilia and with an opportunity to share with others. Children learn about their disorder and enjoy having fun while having a chance to be “just like everyone else”.
“My son and I attended the last New Families camp, and found it absolutely invaluable. It was a fantastic opportunity for us to meet other families who live with a bleeding disorder. Being able to attend the well organised educational sessions was a treat, knowing that my boy was having a fabulous time in the crèche - being cared for by a wonderful group of volunteers. The outings were a bonus too, which we both thoroughly enjoyed. We are the only family in our area living with Haemophilia, and would like to thank the Foundation for their wonderful support they have provided.” – Young mother of a child with haemophilia
Our details:
| Registration No: | CC22765 |
| Region: | Hawke's Bay/East Coast, Waikato/Bay of Plenty/Rotorua, Manawatu/Wanganui/Kapiti, Northland, Taranaki, Wellington, Auckland, Central Auckland, South Auckland, North Auckland, West Auckland, East Auckland, Canterbury/South Canterbury, Southland, West Coast, Nelson/Marlborough |
| Category: | Children's disability support, Parental advice and support, Children's health and rehabilitation, Teenage advice & support, Children's health - life threatening illness |
| Contact Person: | Belinda Burnett (Chief Executive Officer) |
| Address: | PO Box 7647 Sydenham Christchurch 8240 |
| Telephone: | 03 3717 477 |
| Email: | belinda@haemophilia.org.nz |
| Website: | www.haemophilia.org.nz |
| No. helped nationally: | 1000 |
| No. helped per project: | 150 |
| Existing sponsors or funders: | We grateful for the support of our Sustaining Patrons (Baxter Healthcare, Bayer Pharmaceutical, CSL, Novo Nordisk, Pfizer), however, it is only with the generous financial support of caring New Zealanders that we can make our dreams come true. |
