Kids With Arthritis
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Kids With Arthritis New Zealand is the NZ support group for children with arthritis and their families. It is a non-profit voluntary organisation which is under the umbrella of Arthritis New Zealand but receives no funding. It also seeks to educate these children, their families, and to raise awareness of childhood arthritis in the community with issues like, ‘What is Arthritis’, and ‘Even Kids Get Arthritis’. It provides support and information for these children and their families.
KWANZ is a national organisation that has families involved from all over the country.
Children and Arthritis
In the western world one in a thousand children will develop a form of juvenile arthritis. Approximately two thirds of these children are girls. Juvenile arthritis can affect a child at any age. Our group has a range of very young children to young adults.
History
K.W.A. (originally called ‘The Joint Connection’) was formed in 1997 by Rhonda Butler and Kirsten Kennedy, both being parents of a child with arthritis. The JIA support group was started in Christchurch in 2005 by Adrienne Crowe.
In July 2011 the two groups amalgamated to form the new organisation, Kids With Arthritis New Zealand.
Objectives
The objectives of the group are:
- to provide support and information to parents, the children with arthritis and their families
- to organise events for parents and families in order to share experiences and better understand juvenile arthritis
- to raise awareness in the community
For the Parents
Peer Support
Monthly meetings
Friendship
Seminars
Information and advice
Assistance with arthritis management
Access to Community Support Agencies
For the Children
Special Events
Peer Support and friendship
Social / Recreational activities
Christmas Party
Camps
Live Shows
Sibling support
For the Community
Increased public awareness from one-off presentations and seminars
School / Teacher advice on how to manage children at school.
Winning a donation from Sovereign will help us achieve:
Provide a programme of activities for children with arthritis and their siblings
Our details:
| Registration No: | cc22132 |
| Region: | Hawke's Bay/East Coast, Waikato/Bay of Plenty/Rotorua, Manawatu/Wanganui/Kapiti, Northland, Taranaki, Wellington, Auckland, Canterbury/South Canterbury, Southland, West Coast, Nelson/Marlborough |
| Category: | Children's disability support, Parental advice and support, Children's health and rehabilitation, Teenage advice & support |
| Contact Person: | Phil Donnelly (National Secretary/Treasurer) |
| Address: | P.O.Box 48175 Blockhouse Bay, Auckland 0644 |
| Telephone: | 0276 770770 |
| Email: | secretary.kwanz@hotmail.co.nz |
| Website: | www.kidswitharthritis.org.nz |
| No. helped nationally: | 150 families |
| No. helped per project: | 150 families |
| Existing sponsors or funders: | We operate with assistance from and are affiliated with Arthritis New Zealand |
